I am a twenty-five year old and last year at the age of twenty-four I developed severe uro-sepsis. I have a bladder condition called fowler syndrome and have to use catheters which give rise to
infections. For a few months before i was poorly, I had tried lots of antibiotics but the bacteria was becoming resistance to certain medications. I got to the point in December just after Christmas that there was no oral tablets for me to take and that my UTI needed Iv antibiotics.
My gp was really good and sent me to the hospital with a letter. But unfortunately the Dr I saw said I didn’t need IV’s and he was going to give me oral ciprofloxacin. I had to make my point and express my feelings, explain that my bug (ESBL) was resistant to that. So i was given a one off dose of IV meropenum and sent home.
Two days later and i was feeling poorly again with my UTI. So again i spoke to my gp and he sent me back to the hospital explaining that I hadn’t been given a full course. So finally someone listened and i was given a weeks course of IV antibiotics, then sent home. I felt a lot better.
About a week and a half later i felt really poorly. I had terrible abdominal pain, tired, found it hard to walk, sickness and bladder pain and spasms. I went to the out of hours doctors who checked me over but wouldn’t refer me to hospital and said if i feel poorly tomorrow to go to gp. I had been taking strong painkillers and was just going to sleep it off. But my work friends pestered me to see the GP.
So, unhappy with the out of hour’s doctor my mum took me to A&E in which i got fantastic treatment. My pulse at rest was about 130-149, temp 39.0, and my bp was high to start with. They was unsure why i was in so much pain, they also took blood cultures.
They then came to the conclusion that i had severe-urosepsis and was moved to a ward. By the very next day i was moved to HDU and had a central line put in and an arterial line. I also needed drugs to bring up my blood pressure and intensive fluid resuscitation. That day i got worst and had a need for 02 and was still having problems with my blood pressure, so i was moved to intensive care, I stayed in there for five days, had a feeding tube, needed 4 units of FFPs, and cpap as well as non invasive ventilation and lots of different IV antibiotics.
My parents were called to the hospital in the middle of the night as my breathing became laboured and they didn’t think i was going to make it. In ITU I also had, acute renal failure and a ?PE and was very upset at times asking if i was going to die etc.
When i was a bit better i was moved back to HDU for about four days before being discharged home, on a seven day course of ertapenum.
I made a full recovery and put the weight I lost back on. I still have UTI’S and have had sepsis again this year but not as bad thankfully. I think patients need to be aware of the symptoms and gp’s should use antibiotics sensibly.
I was recently on the bbc national news raising awareness on sepsis. I’ll add the link to part of it if I can. I’ll also send you some pictures from when I was in hospital but I may need to send it as a separate email.