In May 2022, 16-month-old James Philliskirk tragically died of sepsis.

Since his death, James’ parents Helen and Daniel have been working tirelessly to ensure that the failures and neglect by Sheffield Children’s Hospital highlighted by the inquest jury are never repeated. 

Their efforts have driven significant improvements in care and response systems across South Yorkshire and beyond.

Helen’s advocacy was recently recognised at Princess Catherine’s Together at Christmas carol concert at Westminster Abbey. The event, broadcast on ITV1 on Christmas Eve, celebrated individuals from across the UK who have shown love, kindness, and empathy within their communities.

Through their bravery in the wake of immense personal tragedy, Helen and Daniel have championed crucial changes. UKST’s CEO Sarah Hamilton-Fairley said: “The Philliskirks have shown extraordinary courage and determination to channel their grief into positive action. Their efforts are already making a huge difference, and we are so grateful for their continued support in raising awareness about sepsis and driving improvements in care.”

Helen’s work with South Yorkshire Police has helped train officers and staff on improving their responses to child deaths, with lessons applicable to all victims and families. 

At Sheffield Children’s Hospital, Helen has been instrumental in appointing a Lead Sepsis Nurse, revising the Spotting the Unwell Child leaflet to include James’s story, and contributing to patient safety initiatives. Training sessions led by Helen are set to begin in the New Year.

Helen has also collaborated with Yorkshire Ambulance Service to improve processes for managing patient belongings, with further updates expected soon.

The Philliskirk family’s commitment to making lasting change ensures that James’s legacy will continue to inspire compassion and improvement in care for years to come. 

You can read James’ story in full here.